LINEUP
LIgatioN versus Surgical Excision of Pendunculated Ulnar Polydactyly
The major treatment modalities offered to patients with type B ulnar polydactyly are: (A) OPD ligation with a suture or clip, (B) surgical excision under local or general anaesthesia. Ligation is reported to be effective, well tolerated and avoids admission and general anaesthesia. However, it is associated with higher complication rates when compared with excision. There is national variation in practice and insufficient comparative evidence to guide management.
Question
Is clinic-based ligation or clinic-based clip application acceptable in terms of: (1) post-intervention outcomes, (2) patient preference and priorities, and (3) clinician preference; compared to surgical excision of type B ulnar polydactyly?
Project Outline
Systematic review
Ongoing
National survey
Prospective national audit of treatments and outcomes
National service evaluation
Service evaluation through a clinician survey
Patient and Public involvement
Patient and Public involvement (PPI) exercise with parents of children with type B ulnar polydactyly
How can I get involved?
We are looking for collaborators at UK hand surgery centres. If you are interested, please get in touch with us at lineup.rstn@gmail.com for further details on the protocol.
Responsibilities of a collaborator
- Register LINE-UP as a service evaluation with your NHS Trust
- Collect data on 5-10 consecutive patients undergoing interventions for Type B ulnar Polydactyly and follow up data at 3 months
- Upload anonymised information to REDCap database (5% or lower missing data rate)
Benefits
- Certificate of involvement will be provided on completion of the project.
- Pubmed citation on any subsequent publication directly related to these data.
- Option to present local data separately (i.e. local or regional meeting).
